医生都说「四肢是海绵」罕病妈妈无法生子,现在「不可能」的全家福照证明她巨大的母爱连老天都动容了!

生命的奇蹟!对22岁妈妈雪莉 (Sheree Psaila) 而言,怀胎是件几乎不可能的事,因为她的生理缺陷让她无法像常人一样抱起、安抚自己的孩子。根据英国《每日邮报》报导,她天生就有一种罕见的基因缺陷:手臂和腿都没有肌肉 。她表示:「他 (孩子) 哭闹时我无法马上到他身旁

September 29, 2016
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生命的奇蹟!对22岁妈妈雪莉 (Sheree Psaila) 而言,怀胎是件几乎不可能的事,因为她的生理缺陷让她无法像常人一样抱起、安抚自己的孩子。根据英国《每日邮报》报导,她天生就有一种罕见的基因缺陷:手臂和腿都没有肌肉 。她表示:「他 (孩子) 哭闹时我无法马上到他身旁并将他抱起来,我必须等别人为我抱起他」。不过即便养育孩子对她来说难上加难,光是她成功生下孩子就已经是奇蹟一桩,一起来看看她的故事吧!

Pic from Caters News - A young woman who was told by doctors that she wouldnt live past her first birthday is now a miracle mum. Sheree Psaila cant hold her own baby boy without assistance and is physically unable to bathe him or change his nappy on her own. She was born with a rare congenital condition called arthrogryposis multiplex congenita (AMC), meaning that she has virtually no muscle tissue in her arms or legs and is barely able to bend her joints. Sheree has had approximately 22 surgeries to help alleviate the symptoms of her AMC, including muscle transfers and tendon releases, but her condition remains largely unchanged. SEE CATERS COPY
Caters News Agency

 

 雪莉一生下来就患有「先天性多发性关节挛缩症」(Arthrogryposis Multiplex Congenita),导致手脚无法正常长出肌肉,医生当时警告雪莉的父母,她恐怕无法活超过1岁。

Pic from Caters News - A young woman who was told by doctors that she wouldnt live past her first birthday is now a miracle mum. Sheree Psaila cant hold her own baby boy without assistance and is physically unable to bathe him or change his nappy on her own. She was born with a rare congenital condition called arthrogryposis multiplex congenita (AMC), meaning that she has virtually no muscle tissue in her arms or legs and is barely able to bend her joints. Sheree has had approximately 22 surgeries to help alleviate the symptoms of her AMC, including muscle transfers and tendon releases, but her condition remains largely unchanged. SEE CATERS COPY
Caters News Agency
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 历经了20手术都徒劳无功,医师语重心长地建议父母让雪莉坐轮椅,送读残障学校。但雪莉仍凭著自己的意志力,在5岁那年挪动双脚成功跨出了第一步,也不畏同学霸凌,坚持每天上学去。

Pic from Caters News - A young woman who was told by doctors that she wouldnt live past her first birthday is now a miracle mum. Sheree Psaila cant hold her own baby boy without assistance and is physically unable to bathe him or change his nappy on her own. She was born with a rare congenital condition called arthrogryposis multiplex congenita (AMC), meaning that she has virtually no muscle tissue in her arms or legs and is barely able to bend her joints. Sheree has had approximately 22 surgeries to help alleviate the symptoms of her AMC, including muscle transfers and tendon releases, but her condition remains largely unchanged. SEE CATERS COPY
Caters News Agency

 

 雪莉就读澳洲技职学校期间,遇见了同样有生理缺陷的克里斯 (Chris),他因为遗传疾病导致脊椎下部比常人脆弱,两人在2015年5月完婚后,最大的希望就是建立一个可爱的家庭。

Pic from Caters News - A young woman who was told by doctors that she wouldnt live past her first birthday is now a miracle mum. Sheree Psaila cant hold her own baby boy without assistance and is physically unable to bathe him or change his nappy on her own. She was born with a rare congenital condition called arthrogryposis multiplex congenita (AMC), meaning that she has virtually no muscle tissue in her arms or legs and is barely able to bend her joints. Sheree has had approximately 22 surgeries to help alleviate the symptoms of her AMC, including muscle transfers and tendon releases, but her condition remains largely unchanged. SEE CATERS COPY
Caters News Agency
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 然而一切没有想像中顺利,雪莉初次怀胎时不幸流产了,但两人仍抱持希望,第二次怀胎终于成功。雪莉说:「医生都说我可能无法生孩子,虽然他们没告诉我确切原因。」

Pic from Caters News - A young woman who was told by doctors that she wouldnt live past her first birthday is now a miracle mum. Sheree Psaila cant hold her own baby boy without assistance and is physically unable to bathe him or change his nappy on her own. She was born with a rare congenital condition called arthrogryposis multiplex congenita (AMC), meaning that she has virtually no muscle tissue in her arms or legs and is barely able to bend her joints. Sheree has had approximately 22 surgeries to help alleviate the symptoms of her AMC, including muscle transfers and tendon releases, but her condition remains largely unchanged. SEE CATERS COPY
Caters News Agency
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 身高只有120公分左右的雪莉成功怀胎,都让医师直呼这是个奇蹟!接下来,夫妻俩搬到了墨尔本,以剖腹生产的方式迎接孩子。

Pic from Caters News - A young woman who was told by doctors that she wouldnt live past her first birthday is now a miracle mum. Sheree Psaila cant hold her own baby boy without assistance and is physically unable to bathe him or change his nappy on her own. She was born with a rare congenital condition called arthrogryposis multiplex congenita (AMC), meaning that she has virtually no muscle tissue in her arms or legs and is barely able to bend her joints. Sheree has had approximately 22 surgeries to help alleviate the symptoms of her AMC, including muscle transfers and tendon releases, but her condition remains largely unchanged. SEE CATERS COPY
Caters News Agency

 

 幸亏男婴海登 (Hayden) 一生下来就有2.5公斤,身体状况十分健康,没有任何残疾或遗传疾病。

Pic from Caters News - A young woman who was told by doctors that she wouldnt live past her first birthday is now a miracle mum. Sheree Psaila cant hold her own baby boy without assistance and is physically unable to bathe him or change his nappy on her own. She was born with a rare congenital condition called arthrogryposis multiplex congenita (AMC), meaning that she has virtually no muscle tissue in her arms or legs and is barely able to bend her joints. Sheree has had approximately 22 surgeries to help alleviate the symptoms of her AMC, including muscle transfers and tendon releases, but her condition remains largely unchanged. SEE CATERS COPY
Caters News Agency

 

 这样的结果让雪莉与克里斯喜极而泣,不过养育孩子的困难才正要开始。四肢无力的雪莉连起身靠近孩子都有困难,更别提将他抱在怀中。

Pic from Caters News - A young woman who was told by doctors that she wouldnt live past her first birthday is now a miracle mum. Sheree Psaila cant hold her own baby boy without assistance and is physically unable to bathe him or change his nappy on her own. She was born with a rare congenital condition called arthrogryposis multiplex congenita (AMC), meaning that she has virtually no muscle tissue in her arms or legs and is barely able to bend her joints. Sheree has had approximately 22 surgeries to help alleviate the symptoms of her AMC, including muscle transfers and tendon releases, but her condition remains largely unchanged. SEE CATERS COPY
Caters News Agency

 

 夫妻两人因此雇用了一名看护帮忙照顾海登,一周来家里5天。不过养育孩子的重责大任主要还是由克里斯担当。雪莉说:「当我们去游泳时,我也会想要在游泳池里抱住他,教他游泳,就像克里斯那样。」尽管生活困难重重,一切都无法阻止雪莉当个好妈妈的梦想。雪莉一边带孩子,一边继续完成在技职学校的学业,已经可以说是凭著母爱成功克服了生理障碍,过著常人的生活!

Pic from Caters News - A young woman who was told by doctors that she wouldnt live past her first birthday is now a miracle mum. Sheree Psaila cant hold her own baby boy without assistance and is physically unable to bathe him or change his nappy on her own. She was born with a rare congenital condition called arthrogryposis multiplex congenita (AMC), meaning that she has virtually no muscle tissue in her arms or legs and is barely able to bend her joints. Sheree has had approximately 22 surgeries to help alleviate the symptoms of her AMC, including muscle transfers and tendon releases, but her condition remains largely unchanged. SEE CATERS COPY
Caters News Agency

来源:Little Things

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