印度男孩原本「头部只能挂胸前」连上学都没办法,经过手术7个月后终于拆下矫正器的模样让人感动到爆哭!

13岁的印度男孩阿利瓦 (Mahendra Ahirwar) 在过去的12年中都过得很辛苦,因为罕见的先天性肌肉病变,导致他的头只能180度挂在胸前。(之前的深入报导可以看这边。)   之前阿利瓦几乎无法自理生活,连吃饭、上厕所等等都需要爸妈帮忙,但多亏了远在英国利物浦的茱莉 (Juli

October 11, 2016
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13岁的印度男孩阿利瓦 (Mahendra Ahirwar) 在过去的12年中都过得很辛苦,因为罕见的先天性肌肉病变,导致他的头只能180度挂在胸前。(之前的深入报导可以看这边。)

 Crocked: Schoolboy Mahendra Ahirwar (pictured) has a rare condition which made his neck muscles so weak that his head hung to one side and he saw the world at a 180-degree angle
 
之前阿利瓦几乎无法自理生活,连吃饭、上厕所等等都需要爸妈帮忙,但多亏了远在英国利物浦的茱莉 (Julie Jones),他总算获得手术需要的1.2万英镑 (约台币57万),也找到医生帮他动手术了!

 

当时在手术后,阿利瓦还需要戴着矫正器至少6个月,并持续观察情况,而现在他的矫正器已经成功拆掉,而且他的脖子也能够顺利支撑头部了!

But thanks to life-changing surgery, Mahendra, 13, above, can now finally see the world the right way up after he had an operation to straighten his neck
 
在过了这么久之后,阿利瓦终于可以看到正的世界,更可以跟其他孩子一样去学校上学!
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阿利瓦的父亲穆克什 (Mukesh Ahirwar) 说:「这是个奇蹟!他看起来棒极了,他的脖子也直了,生活变得很不一样。他现在状态很好。我以前看到他的时候都觉得心碎,我们差点就失去他了。他的脖子弯著的时候他总是害羞到不敢说话,但他现在觉得自己是个正常人了,我们都能看到他的自信增长。他现在非常开心,他说他能感觉到差别,而且他爱死了!」

Before the operation Mahendra, pictured, was unable to go to school. He was restricted to sitting as he was unable to stand or walk and needed help to eat and go to the toilet.
 
阿利瓦并不是从小头部就无法抬起,但随着年龄增长后骨头变得脆弱,脖子渐渐无法支撑头部,而且四处寻医都没有治好。阿利瓦的妈妈苏米特拉 (Sumitra) 也曾说过:「我无法再看他受苦下去了。」觉得整天只能坐在角落的阿利瓦根本无法体验人生,活着比死了还痛苦。

 

在手术前,阿利瓦的手足,11岁的苏兰特拉 (Surendra) 跟14岁的马尼夏 (Manisha) 都在学校上学,17岁的哥哥拉利特 (Lalit) 则已经开始找工作了,只有阿利瓦只能待在家里,就连他的朋友都不太爱搭理他。

Prior to surgery, his mother Sumitra, 36, said: 'I can't see Mahendra suffer anymore. Watching his life is devastating. He cannot do anything by himself.' She added: 'He just sits in a corner of the room all day. It's no life. I have to carry him like a baby everywhere.'
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幸好消息传到新德里医院的颈椎外科医生克里施南 (Rajagopalan Krishnan) 耳中,他也自信地表示能够将阿利瓦的脖子治好,改善他的生活品质。

Before surgery Mahendra needed his mum to feed, bathe and dress him. His younger siblings Surendra, 11, and 14-year-old Manisha, both went to school. And his older brother Lalit, 17, tried to find work. Meanwhile he was left at home. Even his friends used to ignore him 
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克里施南为了矫正阿利瓦的脊椎,切开他脖子前方,然后将颈椎的节换成骨盆处的骨头,再置入金属片让脖子保持直立。

But his fortunes were changed when a mother-of-two living 4,000 miles away in the UK read about his plight and launched a crowd funding page to raise £12,000 for his surgery

 

在整段高难度的手术中,阿利瓦的颈椎都暴露在外。所幸最后手术成功,阿利瓦2月时在住院两周后,就戴着矫正器回家,而现在也终于成功拆除!

In February Mahendra spent a fortnight in Apollo hospital before being allowed to go home to recover in the hope his neck would not bend again. Pictured: With Dr Rajagopalan Krishnan

 

他的父亲穆克什说:「他的妈妈跟我以前从未想过要让他上学,因为他根本没办法。但现在我们有义务要让他受教育,这现在对他来说是可能的了。」

In the first surgery of its kind, Dr Krishnan, who spent 15 years working for the NHS in the UK, had to operate on Mahendra¿s spine by opening up the front part of his neck. In theatre, the front of his cervical spine was left completely exposed because of his extraordinarily thin skin

 

克里施南则说他会继续观察阿利瓦的颈椎状况,但目前他对阿利瓦的复原情况感到非常满意。

Now, seven months on, his neck is still straight and Mahendra¿s future is looking much brighter. Pictured: The schooboy in hospital with Julie, who raised £12,000 for his operation 
 
他说:「他现在的模样真的很了不起。他现在能够让头直立了。」并表示X光结果都显示没有失败的状况!他也发现阿利瓦从原本内向害羞的男孩变成了外向又敢讲话的少年,现在他甚至不太需要家人在旁边看着他了!

 

克里施南医师表示他在未来1年内仍会每3个月检查阿利瓦的状况一次,如果他的脖子状况稳定的话就太棒了,特别是头部跟颈部交会处。他认为阿利瓦将来可能还会需要再动手术,不过现在的他已经可以享受正常的生活了!

Recovery: Mahendra's family are overjoyed that the teenager can finally go to school. His father Mukesh (back far right) told MailOnline: 'I can finally say we are a happy family now. Happiness has found our address after Mahendra¿s surgery. I feel so blessed.'

来源:Dailymail

看到他好起来真的太棒了!他未来还能去体验很多美好的事呢~也把他现在的模样分享出去感动更多人吧!

贊助影片

(往下還有更多精彩文章!)

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