她一出生就罹患罕病「舌头比嘴巴大两倍」差点被舌头噎死，「从中间割开」首度露出笑容萌到你会跟着笑！

美国南达科塔州的这名小女婴佩斯理 (Paisley Morrison-Johnson) 一生下来就患有先天性罕见疾病，拥有跟成年人一样大的舌头，几乎是女婴嘴巴大小的两倍，出生第一周差点因此窒息而死，必须由医疗器材辅助才能正常换气。经检查发现女婴罹患的是一种名为「Beckwith-Wie

October 14, 2016

編輯：ｔｈｉＣＣズッカー

美国南达科塔州的这名小女婴佩斯理 (Paisley Morrison-Johnson) 一生下来就患有先天性罕见疾病，拥有跟成年人一样大的舌头，几乎是女婴嘴巴大小的两倍，出生第一周差点因此窒息而死，必须由医疗器材辅助才能正常换气。

经检查发现女婴罹患的是一种名为「Beckwith-Wiedemann氏症候群」的罕见遗传疾病，会造成舌头肿大，全世界每1万4千个新生儿当中就有1个病例。这样的舌头变异使女婴无法从嘴巴进食，迫使院方必须经由胃管喂食。

廣告1

女婴6个月大时，21岁母亲麦迪逊 (Madison Kienow) 及23岁父亲夏农 (Shannon Morrison-Johnson) 便决定让佩斯理动手术切除舌头一部份，没想到术后割除的部分又生长了回来，让舌头持续探出嘴外，只好进行第二次手术。这次医师将总长超过6英吋 (15公分) 的肌肉移除，才总算停止舌头继续生长。

目前在就读医学院的母亲表示：「术前，她的舌头非常肥厚，还探出了嘴巴，就像长出了成年人大小的舌头。由于她的舌头总是挂在外面，她常会咬到自己舌头、被舌头呛到，医生担心会影响空气的进出，造成窒息。医生说那是他们见过最大的舌头，需要尽快动手术。」

廣告2

第一次手术时，医生先从中间将女婴舌头割开，再割去舌头两侧，直到4个月后第二次手术移除更多肌肉，舌头才恢复正常大小。

而佩斯理终于首度露出了微笑！

PICS BY MADISON KIENOW / CATERS NEWS - (PICTURED: Here is Paisley now at 16months having had her second tongue reduction surgery six months ago after it grew back - she can now smile and also will be able to say mama and dada for the first time soon) - A baby born with a massive adult-sized tongue has finally been able to smile for the first time after life-changing surgery. Paisley, from Aberdeen in South Dakota, USA, had such a large tongue that she needed breathing apparatus for the first week of her life to stop her from choking to death. She was born with Beckwith Wiedemann Syndrome (BWS) an overgrowth disorder that affects one in every 11,000 births worldwide. The rare condition caused the little girls tongue to grow more than twice the size of her mouth and it even shocked doctors, who said it was one of the largest tongues they had ever seen. Until she was six months old, Paisley had to be fed via by a gastronomy-tube because she struggled to eat and wasnt receiving the vital nutrients needed to keep her alive. - SEE CATERS COPY

母亲表示：「我不敢相信，我的小女孩看起来漂亮极了！她进食上不再有困难，让我们安心了许多。她开始会笑了，甚至开始牙牙学语，在这之前她完全无法发出『马麻』或『把拔』的声音。」她还说，术前女儿的外观常引来不少人投以令人不舒服的目光，甚至讪笑，而她常需向对方解释女儿的情况。医生希望佩斯理将来不必再动手术，但仍须追踪Beckwith Wiedemann氏症候群的其他可能症状，包括内脏肿大、低血糖、某些肿瘤的生成机率增高。

PICS BY MADISON KIENOW / CATERS NEWS - (PICTURED: Here is mum Madison and Paisley since the second tongue reduction - she can smile for the first time and soon will be able to say mama and dada) - A baby born with a massive adult-sized tongue has finally been able to smile for the first time after life-changing surgery. Paisley, from Aberdeen in South Dakota, USA, had such a large tongue that she needed breathing apparatus for the first week of her life to stop her from choking to death. She was born with Beckwith Wiedemann Syndrome (BWS) an overgrowth disorder that affects one in every 11,000 births worldwide. The rare condition caused the little girls tongue to grow more than twice the size of her mouth and it even shocked doctors, who said it was one of the largest tongues they had ever seen. Until she was six months old, Paisley had to be fed via by a gastronomy-tube because she struggled to eat and wasnt receiving the vital nutrients needed to keep her alive. - SEE CATERS COPY

来源：Daily Mail

笑起来太可爱了！

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她一出生就罹患罕病「舌头比嘴巴大两倍」差点被舌头噎死，「从中间割开」首度露出笑容萌到你会跟着笑！

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